The following form is meant to collect individual patient requests for the immediate release of their patient privacy violations regarding UNOS’s 2023 massive, 1.5 million members and counting, database breach.
The names and info collected will be forwarded to:
Tynisha N. Smith | UNOS Enterprise Data Management | Compliance and Privacy Program Manager | Office 804.782.4847
United Network for Organ Sharing
Office of General Counsel and Privacy Officer
700 North 4th Street
Richmond, VA 23219
Email: privacy@unos.org
… And possibly the DOJ and attorneys for a class acttion
The following is a patient response to a letter to UNOS Ceo, Dr. Maureen McBride from Senators Grassley and Wyden, Senate Finance Committe.
Our letter:
Dr. Maureen McBride
Chief Executive Officer
United Network for Organ Sharing
Dr,
Regarding the March 27th US Senate Committee on Finance letter to you about the massive UNOS data breach:
We, the undersigned transplant patients who are members of that compromised UNOS database and also members of the National support group Transplantnation.blog, demand to know, was our data included in that or any breach?
Specifically, (per Grassley/Wyden’s request:)
. Has UNOS notified the patients who had their data breached? If not, why not? Provide all records.
. How many patients were affected by the data breach and over what period of time? Provide all records.
. How many patient records were accessible during the data breach? How many patient records were actually accessed during the data breach? Provide all records.
. Have you responded to the Finance committe’s request for these answers? If, yes, when? Please furnish a copy as a matter of public record. We will republish.